Watch: Special Needs Kids in India vs Abroad: A Mother's Journey with Autism Therapy and Resources

3:29 Coming to myself so I am sumati my husband works in it so we live in Bangalore and we have two kids Andy so first one is Nika Elder one is she's 10 years old and second younger one is Sharon he four years old so Nika when coming to Nika Nika is an autistic child she's a special child Andy and she comes under autism spectrum disorder so and nin chapali we got diagnosed so Nika got diagnosed when she was like about 2.5 years old so that means like around maybe 7 to 8 years back okay so that time when we don't know about anything autism and when we are looking for some help or any information in the YouTube or anywhere else in family or friends also we didn't get that much information when we are struggling in those days yeah keeping that in mind so

4:31 For that reason particular reason so I just wanted to bring some awareness in people who are struggling you know for for for the information about autism or who don't know about autism and who are new to this word so I thought like why not why not I should start a channel in particularly in Telugu when where we don't have any information on this so so I have started YouTube channel but the thing is like after starting the channel only I came to know like most of the people don't like to come forward yeah into into social media or anything else in front of the camera bringing bringing their child and telling what is happening in their lives or what the struggles they were going through about the special children and all most of the people they are not willing to come you know forward so that's the thing I learned after I started my YouTube channel but but I'm really happy that after starting this channel so I have

5:33 Given a lot and lot of information genuine information and lot of moral support to so many mothers so many mothers they contact me through Instagram they tell they tell me about their about their children their stories their struggles and they keep talking to me about all these you know so that time I really feel like I have done a very good thing so starting this Channel and and trying to create awareness about this thing yeah so first of all yeah please feel comfortable to talk in whatever language you're comfortable I think the key thing is to get the message out so we can definitely kind of summarize in our description so that we get the message out that's the first thing and thanks a lot for all the services that you do right as you said a lot of people shy away to bring awareness you know parents and so on for different reasons and thank you very much for doing such a noble thought you know bringing that awareness talking to parents because they also don't know whom to approach right because you know a lot of people might not have the same

6:34 Awareness so you know kind of bringing that Community together so that they can share their own insights in how to better handle them or you know something that could work for one kid that can't help other kid and so on right it just kind of establishing that community so thank you very much for that and

6:49 Let's go a little bit into your own Journey right I think you kind of gave an indication about your daughter and she was diagnosed I think you know at the age of two and a half years so maybe you can start a little bit about you know was there anything that triggered or it was just in a regular routine that you know where you discovered about the situation and how was your reaction and how did you cope up maybe you can just walk through us just so that we understand the journey if you're yeah so actually autism diagnosis we got done at 2.5 years when she was 2 and a half years old but before that when she was like 1.5 2 years old so we used to to you know observe like she's not interested in many things like usually very small things like clapping her hands or you know imitating a small guesture something like that she's not at all interested and she doesn't like us to cuddle also she used to sleep away from us in the on the bed during nights so little little things I used to observe because she's completely

7:50 Behaving differently when when I see a typical neurotypical child and why that comparision has come means my brother is having a girl who is 8 months older than n Nika so when I compare both children they they are totally different yeah so during her second birthday so when we were when we were celebrating her second birthday so that time I really felt that something was wrong because she was not at all interested in the birthday celebrations usually 2y old means they'll be very curious and they will be you know enjoying and jumping and this all things will be there but she was not at all interested in you know playing with other kids or mingling with the family members she doesn't care who comes and who goes nothing is happening she will be cranky all the time and and right from birth also during nights he used to get very little sleep during nights so there were very so many nights where we were sitting you know awake during the whole night she was crying crying crying all through the night yeah so all these

8:52 Things were happening so then I talked with my husband he told like okay let's put her in a play school and see how she will be be doing later on we can we can do whatever we have to do yeah so so when she completed her second birthday her birthday is in April so in June we put her in a renowned play school so when we started the play School we don't know we don't at by that time we don't know anything about autism or we don't even know the word autism exist in children okay yeah so after we are sending her to school there we have this camera option also we can watch live what our kides doing in the classroom so every day whenever I used to see the camera I never used to find her in the camera because she was sitting in a corner in the classroom and she's playing on her own she's in her own world she's not at all happy playing with the other kids no Circle time no play no playing nothing yeah so every day when I go to the school to pick her up so I used to talk to the teacher I used to ask them why she is not why I

9:54 Can't see her in the camera so they to tell like she's not interested we will pull her into the Circle time whenever she's ready and the other thing which I observed is like she is not at all responding to her name when I call her so when when all the other children are very excited to meet their parents Nika is not at all showing any interest if Papa has come mama has come to pick me up nothing like that even if I am standing behind her and calling her name 100 times she was not at all responding so that's the time we really thought very serious something serious is happening and we have to go to the pediatrician so we we generally went to the pediatrician and we checked with him that she's not responding to her name yeah then he told like similar questions he asked like if she responds if you call or if she's in another room if she might she will come if we call her like that he asked two three questions and we our answers were no then immediately he told that that might be autism you better go to a child care Development Center where they will

10:55 Do the you know this assessment and all and they will tell whether she has the traits or not yeah so yeah we were very like we were very confused we were you know we never know about the thing that word autism so as soon as we googled that we completely broke down like I was into tears he's into tears we don't know what to do where to go whom to talk so we don't know anything anything nothing zero about autism so immediately we went to that child care Development Center where the doctor referred us to go so they gave us an appointment and the assessment went for 2 to 3 days so after the assessment after one one week or so they gave the report like she comes under the Spectrum and we call it as ASD Autism Spectrum Disorder so immediately they told us to go and join a therapy center which is in sahakar nagar that time so immediately we went to that Therapy Center and we joined Nika there for therapies got it

11:57 Great so I mean glad I think you know you're paying an attention I think some of these clues that kind of triggered that there might be something that you want to have a check and that's where I think it kind of able to discover through a diagnosis and able to so I think after the diagnosis I know you mentioned about like joining her in this development center right so how did the journey go and how was your immediate I know you kind of mentioned about like you know that's the first time that you're hearing about it and so how was that Journey for the next you know 1 to two years and as you continued with your kid in the development center and you as a parents scoping up and you know helping out with the kid so we started with a group therapy so that means in a classroom there will be like 7 to eight parents mothers including kids so they'll be giving a curriculum kind of syllabus kind of everything what we have to do so 45 45 minutes of session they will tell what to do so we have to get it done with the child okay since I'm very new

12:58 To to the environment so by that time I have never seen group of special kids there so it was very very hard for me to go and sit and make Nika work all those activities and by that time new is verbal new is a verbal child so in autism will'll be having two kinds of children like who will be completely non-verbal and who will be verbal so n come comes under verbal she has words she can talk yeah so she has few words that she learned from you know YouTube so whenever she was watching TV YouTube so she used to pick all those you know the vocabulary like shapes colors she can she knows all the alphabet she can identify a to z small and capital letters she can sort out all the you know shapes numbers Vehicles transport fruits like that that basic you know that knowledge what a 2-year-old should have that is there with her but the thing is like she doesn't use that words appropriately when we ask her to got it so since the environment is very new and she

14:00 Doesn't like to mingle with kids and that is a group therapy we started so she was cranky all the time she never wanted to go to the therapy center so she used to pull my hand she used to pull the you know bag which I carry there she used to tell let's go I don't want to stay here come let's go so like that it was very hard she was crying all through the sessions and and personally what I thought is maybe I was new to the you know this autism World however the therapist and the particular Therapy Center which treated the parents I didn't like the way they used to treat the parents know so they used to scold us they used to shout at us why you are not able to do that with your child if I can if I can do something with my child what is the use of coming me bringing my child to your therapy center I can sit at home and make my child learn all by right I don't want to go to the therapy center and sit with all those other kids as well so for one month I tried and tried and tried I couldn't fit into that environment Nika couldn't fit into that

15:01 Environment so we just left that therapy center and we were searching for some other options we were also trying in online they told like some online courses also there we can enroll and we can you know educate my child so we have enrolled for two three online sessions that two didn't work and how our situation is like we used to spend how much we can wherever whoever tells pay for this you go you take that assessment or or take that training you go there you pay some amount you get into that class so we were listening to everybody we were listening to everyone taking everyone's input so we were not clear at that time because we were very low we couldn't see clearly what is working for Nika so after like one year or one one and a half year once we passed all through this depression and all once we accepted that news condition is like that and we have to accept and we have to do whatever necessary things we can do for her so then we started to search for nice therapy centers which Nika can ad just so then we found one Therapy Center

16:02 It's actually a special school so there we found one special educator so what they doing is they are allowing outside children for 1 hour 2our therapies into their school okay okay so we didn't join Nika in the school but we were taking their one to two hour window sessions okay so there we got one special educator so that special educator we feel like it's a you know we were very happy we were lucky to meet that special educator because she worked a lot on Nika and we can see Visible Changes in Nika after she started working so she is a special educator she is a special mom she has a kid of 9y old that time 9ye old autistic child she has so she has done special education in this therapy and she's working on his kid as well and she's also teaching in that particular school okay so like that they assigned that particular teacher to Nika for one hour so we used to to take 1 hour special education and 1 hour occupational therapy because at the time new has very

17:03 Very very very you know many many sensory issues her fine motor gross motor is not up to the mark She's struggling for you know for even pick uping a small thing from the ground her fry motor is not good these all not good so there we have an occupational therapist as well so we opted for occupational therapy as well so we used to take Nika half day to normal school regular play school she's going and in the afternoon two hours one hour is for special education and one hour is for occupational therapy to this particular special school so like that we continued for one month and half year so parall we tried school as well and so I used to be very busy starting from morning to night I used to roam along with her to therapy center to school after lunch like that yeah but after that one year we have seen a very good change in Rika she started you know you know this need basis communication she started so was very very useful for us

18:04 For communicating with her that's great

18:06 So I think that's great I think you can see the progress maybe my one question was how did you down select this particular center right I think you know after like one year you are like looking at different options so maybe if we can talk a little bit about like you know the available options especially in Bangalore how did you evaluate them how did you down select them maybe that could help a little bit in terms of the prospective parents in how to approach that and you know how to think about it okay so coming to this Therapy Center actually no one told us we just Googling therapy centers near to our area so that's that's how we came to find this Therapy Center but coming to therapy center options in Bangalore we have a number of therapy centers So based on your you know the place where you live so I used to since I have to take her alone in the capab so we used to opt for the nearby centers you know so like that we got this Center so I can name it it's a bubbles School bubbles

19:08 School for it's a special school for special children so we have seen the reviews and all so people are talking very good about that we just wanted to see in every therapy for every child is different every child's abilities or you know difficulties are different when coming to this autism okay so we have to give it a try every everything we have to give it a try if it's suits for them we have to continue otherwise we have to go for another option so that cycle continues till now that cycle continues so like that we thought like that group group therapy didn't work for Nika so we l for one to one therapy yeah so that only Nika will be there in the room with the therapist she don't get to see another children because she will get irritated or she'll be she might feel uncom uncomfortable when she sees another children along with her yeah so we wanted to try one to one therapy there we got that one to one therapy they told like we'll give you one to one therapy with the special educator so we wanted to try it for a month so after one week 10 days Nika is very fine with the therapist she's

20:10 Happily going and sitting on the chair for 10 days that therapist you know it was hard for her to make her sit in the chair in front of her she was just simply roaming in the classroom yeah so after 10 days she was fine she's working fine so like that if anybody wants to you know you want to put their child into particular we have to give it a trial so we never know how the kid you know he will settled in that therapy center where you know earlier I told like we took her to group therapy right there the parents used to told tell me like their child took around three months to settle down for the whole three months the child was crying it after three months the child got settled it so depends so my child got adjusted in 10 days some kids might take three months so it completely depends on how the kids are taking and like like that we can just go and select a therapy which fits them so like we did so it's a basically like a trial and error in terms of would work particular kid and the you know the trainer like who is

21:10 Training the kids so how compatible they are maybe it's maybe naive question from M and maybe are there like you know based on the assessment of the child are there different centers that are specialized in certain things or they all like you know kind of in a similar Spectrum Maybe I'm trying to ask is like you know if someone was at a scale one or scale two or three I don't know if there is something like that based on that maybe there are certain training centers that are more G towards someone who is in that Spectrum versus someone who is in this spectrum I don't know again I'm just asking for my own information here no usually when we take the child see our process how it started we went to a child care Development Center and we got the assessment report there yes so whenever we go to a therapy center we just show that report and tell she's autistic again the therapy center where we are going they will do a complete assessment of the child okay they will assess the child they'll be taking track of what he what the child knows or

22:10 Doesn't know where the child's on the scale on the spectrum is it mild or moderate or severe they will just check it out and depending on that they'll be planning a strategy how they have to take forward so it doesn't come like if if the child is very se you have to go to only that particular Center no it's not like that every Therapy Center will handle all the kinds of children here okay that yeah great so how is Nika doing now and how has she progressed

22:40 Since then right now Nika is doing good I would say we can see her progress she's improving day by day year by year that I can come definitely we can see but when compared to a neurotypical child she's not up to the Mark I would say like she's only 50% you know like that so but but the happy thing is like where I feel happy is like she's not saturated at one point so in this you know in this condition some some parents complain that their kids got saturated in that point they're not at all developing beyond that point you know they don't respond to therapies they don't respond to anything anymore so I'm happy like she's not saturated at that particular Point till date she's showing progress she also does academics in the particular Center which she goes now so they're focusing on her academics also yeah she's doing good we are feeling happy for her but still we have lot of challenges

23:42 To face but we are taking them slow one at a time we are dealing with every new challenge that is coming up so right now I would say like you know the experience and time also will make you stronger in this thing so since we are used to all that things now we are like like more strong when we earlier yeah so now we definitely know how to handle the things what we can do for her what will help her that all things we have in mind we're very clear now what we can do what we what we cannot do what she can do what she cannot do so depending on that we'll be planning her you know things that's great so glad to hear

24:18 About the progress and then you know kind of continuing the development yeah so I want to switch gears a little bit I know I think you know from your own Journey talking to you know different parents and your own experience right where you didn't even know about the word autism to where you are right now where you are bringing that awareness maybe you know anything that you can share that would help the parents right you know how to handle this as a journey you know accepting it understanding this Dynamics so from your perspective you can share some of those insights or some suggestions advice I think that would be great in for the parents who have the situation see even now also people who talk to me so most of the parents I talk to they'll be from out of India other countries only so even most of the educated parents also they don't know about autism they never heard about the word autism so when they start seeing something abnormal with the child then only they will come to know that you

25:20 Know or if they they have taken an assessment that time only they will come to know about autism so usually when we hear that word or we Google what is about autism so the information we find on internet it will definitely scare us so we don't want our child you know to be dependent their whole life on someone what the child actually needs so first thing is like we should accept the thing only when acceptance comes then only we can see the things clearly unless and until we don't accept so we will we'll take things for granted so then we will do lot of mistakes which are not necessary for the kid yeah so once we got that acceptance only then we will know the child's ability and capability what they can do that then we can take appropriate you know steps for their growth if we are unless and until we are not accepting we'll just ignore the time

26:21 Okay let him talk he will talk he will talk everybody will tell like that only he will talk by the age of five he will talk by the age of three so if you are waiting for that particular time if you're not accepting the thing by the age of five the things might get worse yeah we are we are we're losing the valuable time yes if we know that there is something wrong with the child at the age of two and we are delaying it till age of five we are wasting completely three years of auspicious time which is you know which can do wonders in the future later on if have we we might have focused on the three years of with acceptance so a lot of the parents do that mistake they don't don't accept the things how they are and they try to improvise in a wrong way which the which the kid cannot you know cope up with yeah so if we can accept and see the things properly clearly then we can definitely do something useful to our kid and we might not worsen the case that's the thing we feel in our you know in our situation if we might have you know observed right from one year

27:24 We have the doubt but we are not we are not like ins why why why we are not doing like that usually what parents do tell you know it's okay she will talk by two years she will talk by four years why you are worrying don't compare your child with other child all all these things we get to hear most of the parents 90% of the parents they hear to their Elders what they tell so they don't they don't accept so even my parents or in-laws also they used to tell me the same thing but after second year we didn't listen to anyone our gut our instinct is telling like no no no don't listen to any you just have to take a step right now yeah so so that is the main thing whatever I tell you know if you ask me what is your this thing don't delay the time don't you know don't listen to everybody who are telling like it's okay wait for some more time some more time some if something is wrong if you really feel that something is going wrong you have to take a step yes so that is the major thing we have to do whenever kids are having any developmental delays now most

28:25 Of the parents are doing that I'm very happy so parents who are talk to me even if they're 10 months old also they could possibly see the things like they're lagging something what I have to do but usually you know when we go to Assessment Center the they the therapist usually they give it time like below two years or below 2. years they don't 2.5 years they don't assess the child because how the brain plays the game is like even though the child is having any development delays at the age of 2 2.5 sometimes it happens they might the brain might grow and come to a normal situation by the age of five got it so then the assessment will go wrong sometimes in cases I'm telling both are there or think is not good or delaying is not good so depends on the TR child is having yeah so usually what therapist the advises till six years they don't assess properly they don't tell that the child has Au autistic traits or they are under autism till the age of six they

29:26 Will just they will give a lenience period like observe observe observe like that they will be telling so that's what I'm telling both sides we have to keep an eye and watch our kids how they are doing how is their development how is their Milestones so that all we have to keep in mind and act accordingly yeah makes sense I mean early detection is always better but I think as you mentioned you know there is a spurt of growth maybe after two and a half years

29:50 So they can even catch up to six years along the same lines one question I want to ask is because you know in India there is this social stigma right I think you know when you have a special needs kid you know your relatives or your neighbors would say something which is maybe different for families who are living abroad right I mean you know that's another thing that they might also be concerned about we don't want people to give you know just an advice right you know we understand so from your own experience like how did you handle that or how things are evolving you know from the social stigma in terms of accepting the kid not for the parents but from a you know extended family and so on so anything that you can share I think that would be helpful because that's I think another concern for a lot of families to move back because they feel like lot of people who intrude and who might like you know they they don't want that kind of pess right they want to take the child as as the child is right not to have any other judgment so just curious anything that

30:50 You can share from your own experience and also talking to other parents how it evolved or changed or is still the stigma there see this stigma comes from the society because definitely there is a discrimination when we have a special child at home so automatically stigma comes because we feel like they don't accept our child they don't let our child play with their child so that is there it is there if you ask me if it is only in India no in all over the world where special child is there there is discrimination so first thing we have to accept the discrimination okay so actually my family also as I told you we don't know about anything about autism yeah same way our family also no one knows about this word autism yeah but still we have cases in our family like my husband's side we have one one one kid with Down syndrome and my M my father side U my

31:54 You know my pedana he is De and Dum by born he's DEA and dum so we have few you know cases in our both sides of a family but but but families doesn't know actually what autism is they might feel you know it's something else autism is something else yeah but touchwood I would say like when coming to this thing acceptance my family has accepted with their whole heart but during in the early days when no was early diagnosed at the age of 2.5 during that time 3.4 years we didn't tell our family that she's having this condition we used to hide yeah so usually people do observe right they used to tell like why she's not you know she's not responding to her why she is not talking they they try to communicate whenever we visit their houses but musika was not at all responding she doesn't care what they are asking she doesn't look into their eyes those things were there yeah they used to observe and they used to ask us why why you are not paying any attention

32:55 She's not normal no she's doing like this like this they used to tell we know the reason why she's behaving like that but we are not open yes we felt that they might judge my child you know we felt we have that fear so when we got telling our relatives family that she's having this condition yeah then I'm telling you then the way of you know the perception their perception of seeing Nika completely changed till that time when we are hiding the things they used to judge us like we were bad parents we are not focusing on her so that's why she's behaving like that etc etc etc but when we when we opened up that she's having this condition then people started to show concern oh oh is this the thing okay you can do like this you can try like this you keep talking to her you you take her to places or you put her in a school so like that some

33:55 Positive inputs have used to come to us so I I tell the people so lot of people will be in in this as you told because of the stigma they try to hide their children only when when we get open up when we tell that our particular child is having this condition then only at least half of the people who are judging us might change their perception then they will get to know Oho okay Oho maybe because of this the child is behaving like this because of this child is talking like this they might get an idea yeah so what I feel if you ask me what I feel is we are somewhat responsible to create the Discrimination to our child because we are not opening up we are not we are not telling what is happening so obviously we are giving a chance to them to judge us got so that's what I think so if we are hiding your child please don't hide your child we should open up and we should tell them what is happening then only people will get to know people will get to understand no

34:55 Yeah thanks for sharing your thoughts on that so continuing along that how are the options in India right so someone who is living abroad who has special need kids some of the concern is the availability of the facilities availability of you know the training centers or you know the care that the people take treating not treating like you know handling or working with the kids or even the schools so if you can talk a little bit not only just on the on the treatment or on the handling but also like maybe schools in general I think it gives a broader picture of the available options so that they get a reality check right you know yeah these are the things or these are things that are not available so that would help people who might have some thoughts about moving to India because of this situation okay because I told you like I'll be talking to lot of lot of mothers through Instagram some people call me some

35:57 People will text me so in that process I'll be asking how the situation is there how the situation is here so I'll be comparing lot of you know situations and conditions yeah depending on that only I'm just telling my opinion okay so usually what happens in India is if if we have to take an assessment we simply go to that particular Child Development Center or the child psychologist then they they get they do the assessment they will give the report like the condition of our child is it ADHD or DD something like that then immediately we go to a therapy center so immediately we'll find a slot we will start therapies yeah so when coming to other countries like USA or UK you know what happens is like they have to wait for the particular you know Child Development Center for an appointment it might take three months or 6 months even one year they have to wait that particular their their turn till then they have to wait wait wait and after they get there you know this thing they then assessment will be done then they will be suggesting few

36:59 Therapy centers or therapist then they have to take the therapy therapies you know yeah if they want to start on on their own if they want to go for a you know private sessions then it might cost a lot for them so usually people there they they wait for their turn to start the therapy and one more thing is like for example that kid has U severe sensory issues they need five classes in a week for occupational therapy but the government is allotting only two classes for a week that might not be necessary for the child then the parents they don't get satisfied with whatever they are getting because they feel like that that one guilt will be there like we are not able to give the necessary sessions we are wasting time with our kid so in particular cases only most of the parents who are living out of India they opt to come and get their kids treated here because here we don't have any waiting time we can take however how many classes we want we can take for of 0 every day and I can afford it I

38:12 Treatment I can try it but those options you will not be getting in abroad yeah they have to wait and wait and wait till they get their turn so that's the only difference here and there but the thing is like there the government will be covering all the expenses but in India everything whatever the penny we spent we have to take it from our pocket we don't have any insurance policies here we don't have any reimburse policies here everything we have to afford yes by ourselves yeah that's the that's the difference here and there but in terms of the options I think you said there's a wide options but even within the treatment itself so it's pretty much the same I mean you can expect you know similar then coming to therapies the I think like they are also getting very good therapies there and I think their therapist are more genuine when compared here sometimes things get very commercialized so in some some centers you know people parents want the transparency but some some centers they don't provide any transparency some parents you know most of the parents

39:12 They want they want to know what is happening with the child when they go inside a therapy center they want to the child what the child is doing throughout the whole session but few therapy centers they they don't allow the parents to watch what is happening inside so that transparence will be definitely missing here so when so when when we're talking about points like that yeah so there outside of India when we talk about like USA UK there the transparency is more so the communication will be very you know clear and everyone will be communicating starting from the the class teacher therapist parent every everyone will be looped and everyone will be updated with what the child is going on here it doesn't work like that and here if the child is autistic consider me

40:16 But again inclusive schol there are so many inclusive schools but 90% of the special children who have attention issues or sensory issues they cannot sit more than five minutes in a chair so they all cannot fit into an inclusive school only children with very milder version of autism or very milder version of learning disabilities they only fit in that inclusive classroom got I cannot make my child sit in an inclusive classroom because she cannot sit yeah so depends so depending on thatment we just you know differentiate but when compared to that that other countries we'll get a very nice environment we can put our child along with other kids as well that

41:16 Discrimination will not be there that understanding will be there differ okay yeah thank you very much for you know in the reality right I think these are some of the concerns and sounds like yes there is transparency issue there is some inclusiveness I you know even though it's available but it's also with some MCs in terms of how the kid can fit in yes is there anything that we haven't covered that you want to bring up I think that could help parents in a similar situation you know when they're thinking about it anything bring up and us some parents so they waiting for the turn to get assessment done so most of the parents they do consider coming back to India so that they might help more but you know

42:18 Situations maybe they may come leaving their you know it might not be possible for but most of the parents who do come back toia if they have parents here or any relatives here so how how the mother will think so I will stay in their place for one year or six months I will cover all the therapies here and I will go back to America or something like that so if parents are considering to come back if you have any more support that you can manage here you do come because coming to therapies here and there everything is same and the transparency is more more there than here yeah only thing is like you will get n number of you you will get to find n number of centers and N number of sessions if you want to give to your child only that thing if you cannot leave your job and

43:18 Everything there and you you cannot come here please don't take any guilt please don't take that guil at alls you can take online parental programs you can you can sign up for that you can get trained and you can train your child on your own yeah sometimes mother is the best teacher Andy if if things are not working well if situations are not favorable then you will be you can become the good therapist to your own child startingly it might feel difficult for one or two months because they don't listen to us we don't how to handle them how to make them sit or how to give them an activity we we never know but once we get trained slowly we can make our child do things they they will definitely listen to us so we have number of options to consider it's not like if a child is a special

44:18 Child then we have to you know come and the settle in India only it's not like that so depending on the situation we have options to choose from we can yeah definitely makes sense one other question that I forgot just wanted to confirm so I know we talked about these facilities right how is it in a just in general I know we talked about maybe in Bangalore that's your experience but overall in India like you know tier 2 tier three cities or big metros how are these options available just curious on that so I know that Bangalore has a number of therapy centers G special schools or inclusive schools or anything whatever you know functional medicines treatments we have number of options here yeah after that I feel like Hyderabad is also good Hyderabad also but remaining places I don't feel like and we have very number of options but we have few options but people who talk to me on the phone you know if they are living in a rural areas like you

45:20 Know even in in Telugu States also if they're coming from a very small small village they don't have any options there they definitely have to travel come to you know nearby City then only they have to take therapies there due to that reason also most of the people some people they don't they are not able to give therapies to their children you know so only this metropolitan cities only if you ask me we have quite good number of options for this special thing and all if you're living in a small town or Village we don't have that many options there yeah makes sense so thank you very very much Miss sumati for taking the time you know being open to share your journey you know which is not very common a lot of people hesitate for that and also explaining the hard realities in India right I mean you know these are the options that are available there are some pros there are some cons people have to make their own decision based on their own personal situation but I think you know the sharing the reality

46:21 Sharing the facts so that people can make a decision so once again thank you very much for being on our platform sharing your experiences with us and also all the things that you're doing to educate to bring these families together to help each other that's fantastic and good luck with everything on that we will share your contact information in the description so if anybody wants to reach out they can reach out so that they can talk and get better information yeah if anyone have any doubt regarding this if you are in a confusion whether your child definitely has the trait or you're simply overthinking you can definitely contact me I'm always available on Instagram so you can find my details in the description box and so lot of things are getting

47:22 Commercial these days treat so us what happens is like when people talk to me also if I tell them that I have followed this procedure they will try to copy that and they will try to imitate that okay might not help with their child so that's why I'm just insisting this point yes definitely so once again thank you very much Miss suti and appreciate again for being on the platform thank you a thank you so much for this opportunity thank you bye