Watch: The Shocking Healthcare Issue That Made Her Leave the US: A Young NRI Family's Tragedy

3:50 10 months old if I am correct by then or so when we got the opportunity we thought like okay if not now it never so we should just try and go and explore US travel around the world it is easy like in our prospective it was easier to travel the world from US and explore and earn some money if possible that was our initial prospective it was two there was a bit of Heston from our Families but there was excitement so I personally have like a lot of family members and cousins ​​in the US so we thought okay let's explore and we have friends and family why not so we just took that opportunity and moved to US in 2016 or so that

4:59 Employment opportunity in the place were we were so we moved to Bay Area so Bay Area we just went in and in 10 days I got a job so it was lucrative and I think I have a lot of family there my cousin is there in Berea and he had like his batch mates college mates like he had like 20 sets of friends there it's like rad than family friends have bum family and our life used to rotate around the friends it self I didn't have any friends as such there family there friends His friends have become my family, it's what I can tell apart from that, I had cousins, so we made the Bay Area's home since 2017, I loved it, I we all loved it, I should say, we loved it more and more than me, my husband loved the US in a big way, I should say, he had big dreams, he was

6:00 Going really good, like, mine was like, I had all two and then to each other, then I found a startup, like, or start up, you know, right, so I used to travel every day to San Francisco, it was exciting, I could see that, it was hard work, a lot of hard work, it was very exciting, life was pretty cool, we traveled to many different places like Hawaii, Mexico, what not, like, we did everything, we had only one kid by then, so we did, life was going pretty smooth, we but at home, this was like, pre-COVID, before 2020 so everything was great we but our parents were liking it was fun i can just put it in one word it was fun we were loving because libraries roads kids fun activities travel didn't like we earned all the good

7:01 Experiences and fell in love with it and we had even bigger dreams we had we had examples to refer to because there were his friends who came in the similar path and made us their homes and earned bigger jobs and made bigger homes and travel more and liked they were growing in there so we were also young and we thought we could also be them i also had example with my cousin we are doing very good in their own life so we had example so we are thinking we are excited to see our life to turn out like That and or this is one side to it the other side was like we applied for GC what you call it 140 pm I never applied mine like my husband was forcing but I never ever thought it's okay he is there he will take care

8:02 Of it or I will just take care of the job and I'll just let the family go on and all enjoy but he was so concerned that okay we will apply it but my kid my elder one was born in India he was always worried about that particular point he is like I ca n't tell you in words because till 2019 he was fine but from 2019 he was like the cycle like those hours was priority date he priority date was 2016 and 2012 it itself is not yet done so when 2016 would come she is already six or what ever the age it is by The time like he was scared that she doesn't know about India will she be thrown out to India this was always the constant worry and even like I switched jobs like left right or center like because it was a startup then I thought I got a better opportunity with a bigger company so I wanted to explore and I looked once joining in toto if I found

9:04 Another company another opportunity I experimented like he had a stable job and a bigger company everything is going great so I thought I can experiment I was experimenting my own way but he had this bigger concern of like what about the GC this was pre covid and covid hit he changed his employer and we were home again we were we were in a beautiful wonderful neighborhood were if not for covid we would have made such great friends our life was only with cousin and Friends, we never looked at who was at the next door but because of COVID we had a garage and our kid was not even going to school so we would work in the garage and she would play outside the garage and on the other side kids would come and play that was the beautiful experience so 2020 also went well and then we like we were expecting our second half

10:06 Life is smooth you see there is not even a single problem life is perfectly smooth we are a happy family we had dreams of buying a new home and we we also had plans that ok gc is not working here so let's move to Canada so he was talking with his employer and making plans he also had talks with few of his friends in Canada and thinking about moving there once our second daughter was born and looked after they are two six Months let's move on there was the plan everything was done things are going smooth everything was ok we're expecting

10:48 Our due date was sometime in November of 2021 and come October 20 I repeat there are no problems with his health nothing he was happy he was healthy nothing suddenly one day in October 2021 I remember so perfectly because I was in a meeting he knocked my door and called me like I have to tell you something what is what do you want to tell I am in in an important meeting he said I can't hear on one side so I was like I was furious why can't you change your headset and something and I am in a meeting I have so many things to do I don't want to listen to your bad complaint that's what my initial reaction was so I was like ok you are you Busy I will talk to you later so once I come he is like I think I change multiple speakers I don't have multiple headsets but I don't hear on one side I don't hear on one side at all but I thought like nestle maybe it's

11:49 My negligence and his negligence to and we were expecting in November this is October October 10th and some date around so we didn't think it's not a big deal it's not a big deal like some times when you get cold and something you will like it is like something like close kind of feeling right I thought it could be something and honestly I do n't research I am in my own pain and my own plans and all of us including we are in his our own plans but I think in the back of his mind this was going on but we were all focused on the next big thing to my younger one so we all focus not November come later was bone but from there the journey rebel My daughter was bone everything November was fine so December was the winter season it was winter and it was no time I remember it so well one

12:51 Time she was still not able to hear so I said like like like my daughter my younger one she was born perfectly fine but still she was suffering she went through a lot of issues I mean like as a four week old she got a cold and she was ventilated like we took her to we were with Sutter Health and what was that Blue Cross Blue Shield Health insurance so we had no issues with insurance we were on track with our doctor regularly that she judged the cold and all they said it's okay it's okay do this what ever you can do with the four week old we tried all the things but one day she was not breathing right so we rushed to the hospital and it was it was event by it self I can say then she was put on A ventilator so from then the journey was not smooth we were suffering with her till may

13:54 Of 2021 sorry may of 202 she had like she had cold and during that time again like we were suffering with all of the issues he he I think his issue was going back like he new what was happening he couldn't here but because of so much busy thing we were never able to focus on him right or so she got cold and she was ventilated and then she came back home we were we are perfectly sanitized and all but she got COVID she got COVID as a two month old she got COVID again she was hospitalized she was taken care to she was taken to Lasalle Packard Children's Hospital she was hospitalized for one week again you know the one she was admitted the first the first statement that the nurse told me not the doctor the nurse told me that she doesn't have high Hope on your daughter you might have to

14:56 Transplant I don't remember two words you might have to do a lot of trans there was some word with covid transplant and all of that and she is just two weeks old so I am highly suspicious as it is covid time only one parent is allowed inside I can't explain the pain one parent stands outside and one parent stands inside and like I have to listen to all of that and only one parent has to go through all of that thankfully she is out of it I don't know what they did but she is out of it she fort they did nothing they did nothing but they just dealt with the words and even with her initial cold also there was no proper on time treatment we were on track with her from then from then I was like I use to message for every little thing to the doctor and like she has the small pimple is that okay she has the small sniffle what ever like every small little thing I use to keep

15:57 Track in between these things my husband has gone to his physical check up and the doctor is like that was in ya and my daughter was admitted like while this was he went to the doctor so the doctor that was a physical check up and the doctor said like you might not be hearing it's a physical check up so you might not be hearing but I think he is 37 by than 36 actually so he said like ya some times you might lose hearing on one side because of genetics and there could be tumor but genetics and age related issues can happen only later when it is 60 plus and all but in your case it should not be the problem it could be tumor let's go to mr okay and we were Fighting with our daughter's issues in the sidelines I can't say like if I list out my daughter's issues

16:59 Like she is as young as three weeks three months old and by the time in May of 2022 she was like six months and seven months right she was hospitalized for that number of times okay I can't say it are they like for all minute things they would say we I think she has to be hospitalized and I like for that six month old they did DNA testing genetic testing they also tested whether she has a cancer or not just for the respiratory illness and eczema they did the test look I can't put it in words what kind of torture we had to go through with the little kid with the little kid I was even frustrated many times but thankfully she is safe now that's what I am I don't want to talk about That's because everything I mean like while these things are going on my husband like he went to the physical checkup and this was 2022 it was like hella you should say so he

18:02 Went to the doctor and he said go to the MRI and he went to the MRI in March because no no no the physical doctor suggested to go to ENT and get it confirmed once and ENT tested the audible like what is the hearing test did something I don't remember the word audible test and something or they did the testing and confirmed or you are not able to hear on one side or you should go to MRI we tried to get an MRI appointment and here I could say like my husband hesitation a lot of things were going on not like he didn't get time to focus on his work he was like okay I can wait to get the MRI done even if there It was a tumor.

18:53 The doctor mentioned that it was just a surgery and it could be taken out. So let me focus on work and I think all go once things are settled down. I am tired of going to the hospital. What his response was, or I can agree. I was tired because I was in and out of the hospital in March. In April, I forced him to go. Please, I am really scared, let's go. And once we tried to get an MRI appointment, he got the MRI appointment for May 21st. We were trying to get it. He got it in May 21st. And he went to the MRI and we got the reports back in a week. The doctor, the physical doctor, who told him to be like the original physical doctor, his regular family doctor, I would only call him and said that he told him that it was an acoustic neuroma until then. I have never heard that word at all.

19:51 An acoustic neuroma and there are the measurements and you come down to the hospital we can discuss about it so we were shocked what is this acoustic neuroma that is like a tumor in the year we by then we did not know that the tumor has grown in to the brain we did not know about that at all so he like as a doctor called up and told him to come down he went to the hospital and spoke with the doctor he immediately said like your tumor has grown in to the brain you have to go to the surgeon he will talk about the next steps when you have to set the surgery date and all of that by then we were already experienced and we were little comfortable with so I then we did not like the way the original first doctor was going like directly return down to the surgery and we we did not like it so I suggested him to like let's go and see what they would say I think everybody else person would do that you are near to a great institute why not just

20:53 Visit and take their opinion we also did that so a I think it's me who called up talk to different doctor send his MRI report CD and everything look there would be some CD with the reports and lsa there everything very response very prompt in setting up the appointment we got the appointment with in a week we got an appointment with ENT that ENT doctor was about I think 70 plus he is a very old guy I think I don't remember the doctor name now but at that point of time when I searched the doctor names in youtube2 and test and with the reports

21:54 And with the reports and the hearing test he suggested like your tumor is benign it's called a cast neuroma but in your case your tumor has grown in to the brain ok and that It is the size of a peanut at that point in time, it is like the tumor that has grown into the brain is the size of the tumor, but it is benign, but it also has a sticky part, I don't know how many things they could derive out of the MRI, but what they said, and you also have to see a neurologist because it has grown into the brain, so they have given an appointment with a neurologist, so we went to the neurologist, he also has seen and said I think you have to go for surgery, now we did not want to go for surgery immediately, knowing that, or we discussed with both the doctors, and the doctor said the only option here is that you have already lost hearing on the left side, right,

22:55 So you have to take, you have to go only for surgery, you can't go for radiotherapy because he has a sticky tumor attached to his, the tumor thing that has It gets into the brain what happens if he takes radiation is it might stick on to the body and that can grow into cancer and become cancer at the later point of time so we were like ok we heard this first opinion and we have also sent this report back home to my parents and to enquire and see what they would so my father talked to couple of doctors here in Apollo care and some ayurvedic doctors also so the Apollo and I have like I have doctor in my family and some pharmacist in my family I have reached out to them also they everybody suggested it is very safe to go ahead with surgery but there is this one ayurvedic doctor I can give the name but he suggested that I think it is done ok this is something at the

24:00 Sensitive place better not to touch the area if I can not say what could be the side effects even if you do the surgery there Could there be something left out like I spoke with the doctor and he said the same thing and he said it is better if you can move back to India and I can try some Ayurvedic medicines and we can closely monitor and it is really dangerous putting your regular day to day activities or it dangerous putting at this point of time because he could hear it, it is something you cannot see so you can still live with it right so till it is really dangerous let's not touch it I heard and I like I also conveyed the same information to my husband he was like he had best friend whose father is a doctor so he was closely talking of course right he was closely talking

25:02 To his doctor uncle and discussing everything taking everyone's opinion be conclusion science like at that point of time I told about the Ayurvedic doctor information also but My husband was like let's believe in science and we are at the wonderful place why not just trust in science and he himself he has done a lot of research on reddit there are some acoustic neuroma groups there is this one in san diego some other hospital there who runs podcasts and acoustic neuroma groups it himself he joined everything and in reddit also he joined all the drugs and was following what are the other patient experiences he himself asked questions and he wanted to be there for his kids everything asked at that point of time that it is the best decision to go for

26:04 The surgery so once we decided we went back to the ENT and I asked him like see I have a six month old can this not wait he was like see if you want your husband and or things will be there there will be other duties just Priority what you will be needed but why am I telling is now he has lost the hearing tomorrow he could lose his balance and he could get a facial paralysis

26:32 Like he was telling all these things of course everybody would be scared so after hearing all of this also if you still think your kids and all these things are important than your husband it's up to you we can still take another MRI which could grow or not grow I can not tell MRI its plus or minus the original result still remember that's what he told me so he even scared he scared us even more so finally we decided like okay let's go for surgery and the surgery the surgery was done on August 1st of 2022 he had a bumpy recovery because it was a it was a 15 hr lung surgery because the skull has to be cut and They have cut open and they have to remove the tumor so and like my parents and his parents have come down but still my parents and his

27:34 Parents can't drive you have friends we did not disclose to anybody because every buddy has kids and it was covid time it was me who alone was fighting like to be underline I don't know driving by then a I was never focused on driving so I was taking what was this one train what ever there was this other train taking the other train and supporting my husband who was in the hospital and I have two little kids this was the shitty experience I would have had and a 15hr surgery I was constantly tracking and going between hospital and home I can't put it in words what the experience was but still after the surgery immediately in the evening 8 o'clock I went and saw him he was perfectly fine he was lock talking cracking jokes with the nurse and everybody he was perfectly fine he was happy that he was thinking from here life goes on I will be

28:38 Happy after five days even while discharging the doctor said that you are very young and you are very healthy you make a job easier and at that point of time I was Thanks to you I wanted to be next I wanted my daughter to become a doctor I had all these dreams I am just speaking out of my mind I had all these dreams and it was completely very he had a bumpy recovery he had like it was a 15 hour surgery because and he had given strong steroids so he had like a lot of issues like high fevers I had family I had friends and all but like we were going through a lot of issues how many times you could disturb them right how many times they would also come and help us of course right so we did not want to inform them but we did not want to trouble them we were facing alone and my parents were there

29:39 At home we were facing alone I was suspecting maybe something bad would happen right but then I went on fine like in agony There was a prompt response from me for every small issue I wasn't on top of it I used to get like I was a complete caregiver to two or three people like two of my kids and him like I used to observe okay he got a tiny thing message and I would get a response if they ask him to get to the hospital I would take an Uber and I would go to the hospital that was the scenario August was perfectly fine he did not go back to work he took a break from work because he had this bad surgery his employer was also his employer and managers were also very cooperative they said take a break chill out and come back in October and he he took that California EDT something benefits and maternity and took all the leave till October October second was his birthday so he joined on October fourth October third and

30:40 October fourth till Then life was going perfectly fine His parents went away My parents went back in October On October 17th he drove himself to the airport and sent him off until then he was perfectly fine And after like in September and October we roamed the entire San Francisco Bay Area We went to Manre We went to like the lock Our parents were here So we do what we do in the pain The time is right So let's go out Take the opportunity and went to him He drove to all ten places Manre 17 Mile Drive Beaches Santa Cruz Everything we went before But we wanted to keep ourselves busy and make the other person happy He drove to all ten places He was happy ok But after my parents went back home he started developing Like this happened immediately After one week after one week my parents went That is October 20th, it's something like he started developing

31:42 Double vision, like he would stand in front of a TV and he would test himself, like can I see with one eye, he had spectacles, so he would say like I can't explain it to you because only a person with spectacles can understand what I'm experiencing, I can't see it properly, is it my sight, and is it my sight increased, and is it classes not enough, he was testing like that, but I think within two days, he understood that this something, this has to be addressed, so we messaged him correspondingly in the second week which needs to be followed, which needs to come up with the MRI, so we were waiting for that, but in between this and he did this, so we were trying not to believe the number of otology appointments I called, like open in

32:46 And around the Bay Area, like we used to live On the South Bay I checked everywhere East Bay Freeman Dublin Somewhere I use to check for otology appointments for everything he went to Cosco and Target to check two sites that are also perfectly fine but he this is not helping him right so I checked for ptm everything used to come post December that is November is a holiday week right so that is post December only but we want a solution immediately so nothing would come up there was one appointment which is we found around near Place and something we gave us around November 20 so we are waiting for that ok something is better than nothing we got something in November 2 I think personally I thought this would resolve by then I was happening but this was going on he was not able to see the double vision he was not able to see the

33:49 Sea properly and I don't know how he drew he drew every where he drew my kid to the hospital everything like he thought this would get resolved but he was suffering internally and around November I said November second week he had MRI and follow up I still don't understand what MRI they have taken in the MRI they have taken and with that report he went to the operation follow up both first he went to the neurologist they saw the MRI and they said you are perfectly recovering fine and he he mention about his problem neurologist what ever I am not aware about if the doctor is seen and the nurse is seen and no but it is the greatest neurology department he told that he is not able to see properly and the lady told him that this is not at all related to the operation follow

34:52 Up ration she went through I thought this to the ontology I will right to the ontologic department you can go to the themaljila ik ok they are not understanding how could I convince this looks fishy I suspect there is something bigger here don't take it easy I will also tell my neurology follow up with them and attend to it properly that'll figure it out he was

35:55 Impatient because he was between then three weeks from October and to November 16 three weeks went off right so November 19 was our daughter's birthday so he waited for that point of time because November 16 his check ups have done and everything he waited and November 28 Saturday he went to ER he couldn't wait he was waiting for the response and nobody was giving any response like this is something important right why are you waiting for it a patient and a family is waiting he couldn't wait so he went to the ER and he wait he was there at the ER for 15 to 16 hours he went in the afternoon and he came back to the home only at 7 am in the next day ok and that was holiday week like November it's holiday week like none of his friends were there none of my neighbors were there like every buddy like I can't say anything to them but I am just

36:57 Speaking about the environment or every buddy went to holiday hour doors were locked me and my two kids were at home and he was at ER like I was constantly talking to him what happened he was not replying to anything he said wait I will tell you everything and he came back home at 7 o'clock and then he conclusion number he said I can't tell you because you will be scared I don't I want to tell you so but why the BP is high he never had a BP complaint why the BP was high he told the ER person he has done several tests and they supposed he has developed a surgical side effect this operation side effect is called dural AVF I have heard any of this before so what does it mean they have cut open the surgery cut open the skull and they have to place it back right dev dev recorded the video of the

37:59 Surgery and they have given us the CD also to be to check everything and all I don't know what to say about that but while stitching back I think the new skin could not adjust the assisting infrastructure and the some nerves got joined I don't know how to do and something got strung I don't know what to say now this none of them like they said after one we talk about them they said this Could happen one of the patients who has undergone brain surgery but you will not believe nobody has talked about this side effect none of them another ENT neurologist told that you could have a leakage and you could have some stitching issue and because of that nobody has talked about that and because of that string action that is like there is some nerves tangled so the operation is getting

39:01 Compromised your eye is getting compromised and that is adding pressure something is doing extra work right so it is doing pressure and because of that pressure his BP is high and because of that BP is high and the vision is compromised so now what is the solution to this the solution to this is brain angiogram like that is they have to do brain angiogram so I think the ER doctors told him to admit immediately but That Poor Guy Who Went Alone to the ER He got scared He got scared and he said I would have to go and see my family once and he came back so I I asked him why did you come back we are struggling here to get an appointment why did you come back he was like he was in tears I was really scared I don't know like there was nobody there was like I was I was thinking to like before he going to the ER I was thinking to inform some of my family and some of his friends and neighbors but the situation was a couple of my cousins ​​were traveling a couple of his friends were

40:03 Expecting and a couple of my neighbors were vacationing because it was holiday time so this was the situation so like if the person who I I could feel close to them they're not in town and they're expecting them like my husband was like why would you trouble them they're in trouble they're in their own troubles right why would you trouble them so let's face our own things like let's face ourselves like I'm like I ca n't put it in words what was the pain I was feeling like it's like it's the really scary thing I mean like I'm all alone like there is nobody else who can come and help us like I have to take care of the kids I have to follow up that right so it was a really scary thing so after that he came back home now I message the neuro again they said like oh I think I remember my husband was the message was my husband was diagnosed with dural AVF so can you please give us an

41:04 Appointment and they have suggested he go to the ER to Undergo a brain angiogram can you please do that like that was the simple words that was the message that I put the response from the neuro department was I think your husband is already admitted in the hospital and it's been taken care of then I said no he came back to the home and we need an appointment then I was really shocked don't they know that he got discharged and we need an appointment now they said like ok after lot of back and forth they gave an appointment on November 23rd I think I might be rang with the date but on November 23rd they gave day they gave a date we were prepare ourselves to go to the appointment he woke up he got ready but we will get a call saying like your appointment is because there is another patient who has got a heart attack and that case is more priority your case is not Priority

42:04 It was cancelled once so we called up and we said ok when are you going to give the next appointment they put us on hold and said ok you might get an appointment on the same day ok after a lot of back and forth they said ok you are not getting today you will get another appointment on November 26 again we got ready prepare our cells and getting ready again they cancelled and again we like he can't follow up because he is suffering suffering I will be following up right so like it's not like in India at least you can go from one doctor to the other doctor here we had no issues with the insurance we are like I even check to see can I see the hospital because of they are not giving the appointment right no the hospital is saying that we had we don't have enough infrastructure to support your patient so they are not taking it themselves so It is not as per the law it is what I found out they cancelled the appointment no. 26 again I struggled to take they will not talk it is only the message but I messaged I

43:06 Called and cried we are researching to identify hospital I even wrote the message say lock we have young kids you know two it could not be priority at the moment you are making the case to be priority please address the at the earliest possible point this was my message they gave another appointment no. 28 they cancelled it again this time he already entered into the r and they cancelled it again and this time I lock I literally took a I called up the ENT I called up the neuro I called up emergency I called up everybody and I told like please you are making the case priority please give us an appointment

44:06 Finally they gave an appointment Cancelled for three times I don't know if there are only a few doctors who can address like the person who got a heart attack is being treated why not my husband can't be treated like there are no other doctors available ok these are specialist cases these are things so your set can handle a specialist doctor it was right it was my burning question at that point of time so he got the appointment no december f I think by then he was to me he told me only left I he can't see but I think by then he can't see either I he developed double vision neither the side explanation and my understanding to that is or the pressure is building you are cancelling the appointment for multiple times and you are causing the family to undergo a lot

45:07 Of pressure he is a responsible father and husband and an employer he is I don't know how did he work at that point of time he went back to the work only I'm suffering from this, he used to always sit in front of the laptop and work, I was communicating with doctors, getting appointments and everything, he got the appointment on December 22nd, first they asked him to come on 5 o'clock at 5 and 6:30 I remember my cousin like this time I remember my cousin who has no kids, we wanted to not travel and trouble anybody else, so we don't know what could this turn out right, so who has no responsibilities, thankfully there was a cousin, we called him up and he dropped him to the hospital, he was there at the hospital by 6:30 again, this was Covid time, I can't say that was Covid time, but that was December 22nd, but on the doctors only the patient is allowed inside, I can't tell what kind of

46:09 Lock the patient would need some kind of Moral support right or I can't go I have two young kids but still what kind of what do you I can't I am not getting words now but policy it policy it is right it is it is the worst thing so he went to the hospital he was at the hospital but that he was not touched till December 1st afternoon 2 o'clock right or from morning he was at the hospital 6:30 he was not being touched till 2 o'clock ok and I was constantly asking why are you not being treated why is the doctor not coming to you they said some nurse is coming and telling that your case is not priority there is another heart attack person someone else treated I was furious by then like are there only a few handful of doctors why are you not why are they not

47:09 Addressed at least now you are already in the hospital he is not being given food also I asked the doctor, I called up the nurse and told him he had his dinner last night at 7:30 and early before then that he might be week can you please give him something when I asked they gave him they put him saline I don't know I can't tell you I can't tell you what kind of feeling it is like you could have asked like why don't you guys not think of going back to India I'll like before by the time they are cancelling the appointment and one I got to know that he developed another side effect I told my husband let's go back to India there could be something else like my parents are there your parents are there like we will have a moment of support we should we will not there is no need for us to rely like who should we call how the kids need to be taken care of like how the transport needs to be done this This environment and infrastructure

48:10 Feels so helpless let's go to India he only told one word if like I think he got scared we all got scared because of the Covid handling of India like and the reports and all of that like no one of his cousin passed away in India because of Covid I think he got scared and he said like if I would be survived I can be survived only in India I'm sorry only in US so I will be in US if you want to go you can go you are free to go but I don't want to come he was so edmentum I do patient wants to be here so I will be just there to support right so I tucked about that on fifth when the doctor the no doctor has come to look at him once till 2 o'clock I told like you said that you will get a best treatment till 2 o'clock nobody is coming he said or Someone is saved and they are getting survived because of us let's just think that let's just pray for them to be healthy and

49:12 Happy I said or we have to be happy also right like I am wife, I wish for my own family's happiness so he said or I understand but what it is at the moment so he called up at 8 o'clock my own my husband called up at 2 o'clock and told like the doctor has just come and I am going for the treatment you will get the response after the treatment and what are the next steps and I said ok I did not even wish him all the best I have that regret even today so they treated they started treating him at I think they prep they did the anesthesia and all of that and they started the treatment at 3 o'clock and I think by 6 o'clock the treatment is done I was waiting for the I think what happened was in the form my husband has given the emergency contact number his own number ok and in the same form he gave his wife's number also but at the

50:14 Hospital after the treatment is done they called up my husband's number and they said lock the angiogram and he is under observation things seem to be under control but I don't know right like nobody has informed me they called up that number and that number is in his bag in the hospital were ever under the control of the hospital administration I don't know I was like I was feeding my kids I was taking care of their homework changing the diaper in all these things I was calling up the hospital constantly and there is nobody else with me at home there is nobody else like literally nobody else my parents no like they are in India they are also waiting for the report so like they called up and they wished all the best And all of that but they are they are waiting for the report from me again right either I call them up and the reception would say that actually my

51:15 Husband sent a picture before he is going to the hospital he is telling me to call this number for any information so I had that picture so I call that number and they said that the response from them was I think the surgery is done but we need to wait we will get you the response I call them up multiple times I did not hear anything at around 8 o clock a doctor ass neurologist has called me up and said my husband is not waking up we are we gave him powerful shots powerful some lights and we are giving him hard strokes beatings and but he is not waking up we are rushing in to an emergency cranio lock I really am locked I don't have any words I don't know what's going on we started with the Simple surgery to remove his tumor we ended up at dural and now you are saying another surgery i am how many

52:15 Times would you cut his skull lock just tell me will he be alive ts what i asked they said or he is in our hands we will take care of him so i ask what will happen like they are asking my concern weather to go to an immediate cancer tummy do what ever possible like to me like or two i have experience i don't know anything about medical world anything so when they ask me about weather no can we go i said do what ever you want but i want my husband back as a perfect human being who can work who can drive who can take care of me and my kids ts what my response was said lock or we are rushing into the emergency surgery again they called me up they called me up at 12 oh cluck no at 11 o'clock and they said the surgery is done he is again in observation but he is losing a lot of blood

53:25 Thatchy thing like I mean like you are saying he even if he is alive he is like a kid already right I was scared I was [ __ ] scared by then and I then no when I got scared then I called up my like then I open up my communication I wanted to open up and tell other people because I am [ __ ] scared at my home like I want support I want to go and see him then I called up my immediate cousin and I told her that he is not coming and the doctors have told this can you come home she immediately drovotas

54:26 For all the medical students they will do some residency kind of thing that residency intern has called me and told me that we are very much scared of him Life okay you have two young kids it is raining outside get a person bring a person who is elder to you along with you and come to the hospital I understood by then I understood the scenario like aa I told my cousin like let's go there something fishy let's go there I think we went to the hospital it's raining we called up I called up my dad I told like this is the scenario everybody was furious like everybody as wait I think the patient was there I can't see it patient and dead body and what is it by then there was nobody else there was only

55:31 Resident doctor and the patient inside and some nursetty to see what's inside one I got the first vision after his first surgery he was talking chairing up cracking jokes with the nurse to the vision now he was literally on the bed and could see him in deep sleep and there was dialysis machine put on his body which is for kidney it is not working that's why he was on dialysis right so and nothing he was just in a deep sleep I understood my life by then I could understand everything by then so that was the vision and they said tomorrow morning all the doctors All the senior doctors would come and give you a brief of but what happened I was like what why should you wait till 7 o'clock like is this some like for you it could be just

56:33 A number for me it's my life right so what else can I do I ca n't shout and I can't do anything so I went back home I called up my friends and every buddy I informed every buddy that he is in critical condition there are like as I told he has like a lot of there he has got like some wonderful friends I could just say like they are like a big help I inform them they way everybody not informed anybody so couple of friends one my cousin who was with me she also came to the hospital and by like when I went to the hospital at 7 o'clock and 738 there were a set of doctors who came and they Are it like a regular software meeting there were some slides and then some images of brain and all I only ask one thing don't explain me everything is he

57:34 Alive or dead he is dead and I what did you guys do wrong where did we go wrong what did I do wrong and what did he do wrong why couldn't you tell us this side effect earlier right you could have told us before we could have thought much more scenario and we could have waited we could have taken five more years and we could have done something else right these doctors would say like in my 30 years of experience this is one of its only case I ask like you cancel the appointment for three or four times would that not cause any pressure they said or the result could have been better but we don't have an answer to it I just feel sorry then I said you don't need to explain me any of these things I could be rude but this is what I behave at that point of time I don't need to explain me anything I don't want to hear anything All thanks to you and your hospital because you guys were just cancelling the appointment you gave us like see if a person has to die let him die

58:35 Peacefully right why you why should you have to give this long like the like may be I am not putting my words giving the pain what is it but an appointment being cancelled and taking the appointment back again and you can't go elsewhere you are tied up with this here it is myself I like it is not the easy thing to face and again you have to sit with the nurse sit with the doctor and get back an appointment I don't know if My words are telling the pain that I've undergone, but it wasn't something easy, and for that person, he is going through that side effect thing from October and to November until the time pressure could have built, and then from November to canceling the appointment again, the pressure could have built, I think whole of this thing could have been avoided, that's what I want to communicate, or tell it, but the neither was declared dead, I just told him one thing, he was the strong person who walked to the

59:37 Hospital, walked to the hospital, and now coming back to the hospital as a dead body, I don't have enough words to say very much, I am thankful to you, I was like, this is not a hospital, this is something worse than the hospital, as soon as I came out of the door, there was a social worker who asked me at that moment, like, what are you, not like is it Have and it depends I know

1:00:01 You're asking for me and my kids' benefits and to kick me out of the USA right but that's not the time not the moment you could ask my friends and family I wanted to hit her at that point of time I'm really sorry but I wanted to lock me like I'm coming out of a room where my life will change forever I'll meet someone for me and my kids' future will change right so what can I tell like why do you care about the visa if you want to get me out of the USA I don't care at that point right or this is the story like I wanted to tell you I don't know if my words have put in enough details but I want to highlight another thing recently one of my friends like they were like they were our avant-garde I mean like in the same neighborhood not the best of the best friend but we know

1:01:02 Them by like our kids and their kids use to go to the same school so through like through friends friends I got to know them that they've also gone through a similar thing and they've also gone to of course everybody and that person is dead now like all I can say at this point of time is I'm not able to pin point it anybody I don't want any medical and legal cases and anything I also thought about going to the hospital but people inform me that high number of lawyers and everybody would never come back so that's when I step down but like after hearing all of these cases people pass people expiring at the earliest

1:02:05 Ages who could live a full life I can say that it is just it is it is just because of the US infrastructure and health care and things have been worse like that like having been like having Having moved to India I could see like how like I have experienced like there could be many cases here to but I can see like if not this hospital I can take him to the other hospital there could be another hospital like if not hospital A there could be hospital B hospital C like we have in Hyderabad and Bangalore and anything we have number of hospitals or there could be situation where there is no oxygen available and all but at least to me I am not stuck to one doctor right or no I mean I know it it is a very hard thing to you no explain and go through I mean I think it comes from your words the pain that you have to go through with the young kids and you are not able to do anything to you get things done right like scaling the appointment and you know just in another

1:03:06 And and receiving and you know that I can feel it and I can hear the pain I think the key The thing that you're trying to do, I mean, if there are a few things that I can just be surprised by, what I've heard, is that you know the helplessness, even if you have friends and family, like you know people around, there's this concern that you don't want to give them, I mean, even if you're going through the pain, and you're going through not a good time, I mean, you just need some support, but at the same time, you're being cognizant not to give them, is one aspect. The second aspect is how life can change from being everything going well to suddenly, I mean, it can happen anywhere, but the key thing is, there's you know until you go through this situation. You don't appreciate and understand the nuances of the system, like the weather, the health care system, and you know some of the details, and also like the pain in terms of, you know, the appointment cancellations. The limitations you know not having the flexibility to try out different things which makes it worse

1:04:09 And the struggle and the pain that your husband Shrikant has to go through from October till December first which is huge right I mean there is no way to put words to that and the struggle to go through that I mean again you know things happen but there is a way to address it I mean even if they know it is one of a situation there is a way that it can be addressed you know price priority I mean it is not like you know it is a bigger hospital there are lot more faculty there are lot more doctors this is not like a you know not one doctor is taking care of all the patients like there are rotation doctors and all that stuff exactly my only concern is that we have from my childhood I have seen n number of Indian movies where a hospital is being misused we have seen like they They would keep the dead body inside and they would rotate and all of us have seen a number of situations like this in India also but there is a flexibility if not here you can go to another place another doctor and or we have seen

1:05:11 Covid mishandling also that scared us but I think I spoke to different doctors here like after coming back to India I spoke to a couple of doctors they said like your case is just bad luck because we have handled such cases here with ease we will tell you whether you should go to surgery or not and what will happen we will give you the like they couldn't have given a I can't say like grass is greener on the other side always but still he was saying like the infrastructure the load US doctors ca n't handle it the load and the infrastructure we don't have as glassy as gloss as rich as US but we can handle things Better here and I want to highlight one thing also I have heard from lot of my friends and my cousins ​​and every buddy that it is just one single case not everybody would face it yes nobody would face it and I don't want anybody to face it but still I am saying that

1:06:11 One day and the other things will not be bright all the time we will have to go to a doctor like there were several times where I have gone to what is this urgent care and I would be in pain they would not come we have to wait for you they will make us sit there for two to three hours and only after two to three hours you will get an appointment it's always people are more resources are less it's always the case and I use to get I use to feel what do you I can't put it in words I use to feel frustrated like why I have to like I am in pain Why do you have to wait for two to three hours for a single appointment right like you have you have world class facility you have world class infrastructure just do more doctors like even like not not just to that like one a young kid is going through cold cough all these things just go and check in the prime winter season to get an appointment for an urgent care you will not get it it's like I have a lot

1:07:14 Experience you will get closed window and with in that window you have to book an appointment other wise you have to do self care what is this like I am personally not happy like I like of like I will move to India in 2024 like I am saying things are not beautiful either but I have been able to visit doctors in the short span like from the time I moved like doctors have changed honestly I have gun like my daughter has gut cold after move like after the big Move and I took her The doctor spoke everything And he said I don't want to give antibiotics Because antibiotics will do this He was explaining to me I haven't seen this thing before I haven't seen this thing before Really I was really impressed I'm not I'm not embarrassed But things have changed It's not definitely I mean I think you know Thank you for sharing this I mean this is not an easy thing And again I really appreciate you taking the bold step And right share your experience I mean this is something That you have gone through And sharing

1:08:24 That h